Find links to the Down Syndrome/Genetic Conditions Information Acts passed in each state and the corresponding department of health resources. Almost all states recommend our resources as part of their state fact sheets.
State Laws and Fact Sheets
Below are links to the states where Down Syndrome Information Act laws have been passed and the corresponding state information required by the law:
DE State Law
DE State Fact Sheet (PDF): According to the Delaware Academy of Family Physicians, “The Division of Public Health, in partnership with the Down Syndrome Association of Delaware, is providing access to up to date information in two booklets available to health professionals online … The pamphlets are available free of charge by request from the website: www.lettercase.org.”
NJ State Law
State Fact Sheet: Not Yet Available
VA State Law
State Fact Sheet: Not Found
Fact Sheets from the Center for Dignity in Healthcare for People with Disabilities:
On October 8, 2008, the “Prenatally and Postnatally Diagnosed Conditions Awareness Act”2 was signed into law “to increase the provision of scientifically sound information and support services to patients receiving a positive diagnosis for Down syndrome or other prenatally and postnatally diagnosed conditions.” Unfortunately, the federal law was never funded; therefore, several states have proposed and/or passed similar legislation. The Center for Dignity in Healthcare for People with Disabilities (CDHPD) designed this fact sheet as a resource for people to quickly find the Down syndrome information dissemination requirements in their state’s statutes and, where statutes do not exist, their state’s legislative history.