We are excited to share with you our new manuscript (“Recommendations to improve the patient experience and avoid bias when prenatal screening/testing”) in Disability and Health Journal. Our multidisciplinary team of advisors for the Center for Dignity in Healthcare for People with Disabilities worked for over two years on this article to give recommendations to Read more…
For Health Professionals Supporting New and Expectant Parents: For Health Professionals Supporting Patients Across the Lifespan: Other Information to Share:
Watch our webinar about strategies that local Down syndrome organizations can use to apply for grants to fund medical outreach efforts: Finding grants. Local Mission specific Relationships with funders Check out funders and other projects funded Federal: Get partners with experience getting federal grants, like universities Applying for grants. Follow Read more…
On May 13, 2022, the National Center for Prenatal and Postnatal Resources, housed at the UK Human Development Institute hosted the Prenatal Disability Education Summit. This event was sponsored by the Joseph P. Kennedy, Jr. Foundation(JPKF) and brought together national medical, advocacy, bioethics, industry, and policy leaders to collaboratively identify current challenges and potential Read more…
Listen to Stephanie Thompson from the National Down Syndrome Adoption Network provide an overview of their work. NDSAN has also created a booklet for clinicians to give to families who have a prenatal diagnosis and who are considering not parenting entitled, “A Loving Choice: Adoption as an Option.”
Learn how to create your own customized medical outreach plan based on the plans we developed through our grant-funded medical outreach team, including 12 local Down syndrome organizations of varying sizes and demographics nationwide. Access the video demonstration here: You can also access the Powerpoint file below: Any organization is Read more…
Burmese Example Check understandingdownsyndrome.org and click on globe. All resources translated by a American Translation Association certified translators and include links to associations in native countries. Find out which countries speak the language. Example: Bangladesh and Myanmar (formerly Burma) Visit Down Syndrome International to find the Ds orgs in those Read more…
We’re pleased to share that we’ll be presenting and exhibiting at the 2022 Down Syndrome Affiliates in Action Conference in Las Vegas February 17-20. We hope you’ll join us at our session and visit our booth to check out what’s new and enter our prize drawings. Check out our sessions at the Down Read more…
Listen to leaders of local organizations with strong medical outreach programs and resilient budgets who can offer insights about how to build sustainable medical outreach programs. Maggie Ranz from the Down Syndrome Association of Greater Cincinnati, Kim Baich from the Down Syndrome Association of Central Ohio, and Amy Allison from Read more…
Over the past two months, the Lettercase National Center for Prenatal and Postnatal Resources has provided training, support, and resources to 24 local Down syndrome organizations across the US to assist them in strengthening relationships with local medical providers and improving the diagnosis experience for expectant parents. Each organization has Read more…