On May 13, 2022, the National Center for Prenatal and Postnatal Resources, housed at the UK Human Development Institute hosted the Prenatal Disability Education Summit. This event was sponsored by the Joseph P. Kennedy, Jr. Foundation(JPKF) and brought together national medical, advocacy, bioethics, industry, and policy leaders to collaboratively identify current challenges and potential Read more…
Listen to Stephanie Thompson from the National Down Syndrome Adoption Network provide an overview of their work. NDSAN has also created a booklet for clinicians to give to families who have a prenatal diagnosis and who are considering not parenting entitled, “A Loving Choice: Adoption as an Option.”
Learn how to create your own customized medical outreach plan based on the plans we developed through our grant-funded medical outreach team, including 12 local Down syndrome organizations of varying sizes and demographics nationwide. Access the video demonstration here: You can also access the Powerpoint file below: Any organization is Read more…
Burmese Example Check understandingdownsyndrome.org and click on globe. All resources translated by a American Translation Association certified translators and include links to associations in native countries. Find out which countries speak the language. Example: Bangladesh and Myanmar (formerly Burma) Visit Down Syndrome International to find the Ds orgs in those Read more…
We’re pleased to share that we’ll be presenting and exhibiting at the 2022 Down Syndrome Affiliates in Action Conference in Las Vegas February 17-20. We hope you’ll join us at our session and visit our booth to check out what’s new and enter our prize drawings. Check out our sessions at the Down Read more…
Listen to leaders of local organizations with strong medical outreach programs and resilient budgets who can offer insights about how to build sustainable medical outreach programs. Maggie Ranz from the Down Syndrome Association of Greater Cincinnati, Kim Baich from the Down Syndrome Association of Central Ohio, and Amy Allison from Read more…
Over the past two months, the Lettercase National Center for Prenatal and Postnatal Resources has provided training, support, and resources to 24 local Down syndrome organizations across the US to assist them in strengthening relationships with local medical providers and improving the diagnosis experience for expectant parents. Each organization has Read more…
We’re pleased to share that we’ll be presenting and exhibiting at the 2020 Down Syndrome Affiliates in Action Conference in Orlando next week. We hope you’ll join us at our session and visit our booth to check out what’s new and enter our prize drawings. You can also get 20% off all printed Read more…
At the end of 2019, the Administration for Community Living awarded a new grant totaling $1.5 million over three years to develop and disseminate protocols to address and prevent healthcare discrimination that can impact Americans with disabilities across the lifespan. The University of Cincinnati Center for Excellence in Developmental Disabilities was awarded the grant Read more…
On Friday, October 18, we will be presenting at the American Society of Human Genetics 2019 Annual Meeting on a panel with other experts on “The Intersection of Genetics and the Disability Rights Movement: Beginning a Dialogue about the Impact of Prenatal Genetic Screening and Testing on Historically Stigmatized Populations” Read more…