Watch the video from our most recent medical outreach call about the results from our community conversations with Black and Hispanic parents of children with Down syndrome and their specific suggestions for how advocacy organizations can better meet their needs. You can also learn more about our Patient-Centered Outcomes Research Institute (PCORI) Project to improve the dissemination of research to Black and Hispanic new and expectant parents of children with Down syndrome, and read the white papers that give specific ideas for advocacy organizations and medical providers!
Publications
Journal of Genetic Counseling Article
One of our genetic counseling student colleagues at Wayne State University, Maryam Ijaz, and her program director, Angela Trepanier, performed an analysis of the data we collected from patients about their genetic counseling experiences, as Read more…